Peer Support Guide. HIV Support Groups and Peer Support Programs in the Greater Boston and Metrowest areas

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Peer Support Guide HIV Support Groups and Peer Support Programs in the Greater Boston and Metrowest areas A project of the Peer Support Workgroup of the Greater Boston/Metrowest HIV/AIDS Service Coordination
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Peer Support Guide HIV Support Groups and Peer Support Programs in the Greater Boston and Metrowest areas A project of the Peer Support Workgroup of the Greater Boston/Metrowest HIV/AIDS Service Coordination Collaborative December 2007 JRI Health, Center for Training and Professional Development 25 West Street, Boston, MA 02111 This guide was compiled by members of the Peer Support Workgroup of the Greater Boston/Metrowest HIV/AIDS Service Coordination Collaborative (SCC) and staff of JRI Health, the Massachusetts Department of Public Health-funded coordinator of the group. Peer Support Workgroup members Gerard Alexis Melanie Cohn-Hopwood Lucianaga Edwards Gretchen Hill Meredith Gilbert David Gray John Kane Drew Kawasaki Paul Keating Zita Massena Emerson Miller Madeline Pagan Lester Payne Steve Perreault Pat Regan Iris Rivera Florence Saintiche Kim Tracy Kate Walsh SCC Staff Beth Hastie Bradley White Thank you to the following people who completed the group s survey about HIV peer support programs: Pat Regan, AIDS Action Committee Melanie Cohn-Hopwood, Boston Living Center Lynda Burstein, Boston Medical Center Gretchen Hill, Cambridge Cares About AIDS Zita Massena, Center for Community Health. Education, and Research (CCHER) Mauricio Rodriguez, Centro Latino de Chelsea Sara Ortiz Escalante, Concilio Hispano, Inc. Hannah Lewis, DEAF Inc. Chevelle Sloan, Dimock Community Health Center Gail Beverley, Fenway Community Health Jean-Claude Bastien, Haitian Multi-service Center Ismael Rivera, Health Awareness Services Heidi Bright, Healing Our Community Collaborative and AIDS Action Committee Israel Flores, Hispanic Office of Planning and Evaluation (HOPE) Paul Keating, JRI Health Alberto Rodriguez, Marta Cass, and Melisa Flores, Latin American Health Institute Cynthia Harris, Multicultural AIDS Coalition Sandy McLaughlin, Massachusetts General Hospital Judith Molinari-Wynn, MGH Chelsea Health Center Betsy Conway, New Beginnings, South Middlesex Opportunity Council Annie Montgomery, SPAN Inc. Melida Arredondo, Upham s Corner Health Center Jane E. Scherban, LCSW, LMHC This document will be updated periodically. For changes, additions or updates to the information in this guide, or to receive this publication in electronic format via , please contact: Bradley White, SCC Project Manager, JRI Health, 25 West Street, Boston, MA 02111, phone: (617) x 210, fax: (617) Table of Contents Peer Support Programs by Agency 2 HIV Support Groups Peer-led: Facilitated by HIV+ Peers 12 Peer and Staff Co-led: Facilitated by HIV+ Peers and staff not identifying as HIV+ 16 Staff-led 19 Other Peer Support Activities 24 Spanish Language Peer Support Groups and Activities 27 Haitian-Creole/French Language Peer Support Groups and Activities 34 Index 36 Peer Support Trainings 37 Peer Support Programs by Agency AIDS Action Committee 294 Washington St., 5th Floor Boston MA Main Phone: (617) Fax: (617) TTY: (617) Wheelchair Accessible: Yes Website: Peer Support contact person: Patricia Regan, (617) , Program description: individual support and assistance; speaker s bureau; drop-in program; peer mentoring; buddy program. The Peer Support program provides on going support groups and one episodic Community Lunch Group Criteria: Clients and HIV+ non-clients Healing Our Community Collaborative Long Term Survivors Support Group Men s Health Support Group Newly Diagnosed or Returning to Care Support Group Positive Providers Support Group Team Life Support Group Other Peer Support Activities: Community Lunch Boston Living Center 29 Stanhope Street, Boston, MA Main Phone: (617) Fax: (617) TTY: (617) Wheelchair Accessible: Yes Website: Peer Support contact person: Melanie Cohn-Hopwood, (617) x 250, Program description: Peer support groups, one on one support, new member orientation, one on one buddy support to acclimate new members, activities, family support, daily meals, career counseling, mental health referrals, other outside referrals Criteria: Members only for most activities. Participation of friends and family at meals is welcome. To become member, contact Center for orientation intake. Other information: Childcare and Spanish translation available with 48 hours notice. American Sign Language (ASL) translation available with 3 weeks notice. Bridges For Life program Deaf Peer Support New Members Meeting Gay and Bisexual Men s Group Healthy Relationships 2 Heterosexual HIV Support L.I.F.E. (Learning Immune Function Enhancement) program Chat Before Brunch Spirituality Group Women s Support Group Other Peer Support Activities: CyberSpace computer training Meals Program Yoga, Reiki, Energy Healing, Massage Boston Medical Center Center for HIV/AIDS Care and Research 850 Harrison Avenue, Boston, MA Main Phone: (617) Fax: (617) Website: Other information: No peer support program, but does offer HIV support groups for people receiving their medical care at BMC. For information, please call the contact listed after each group, or call Lynda Shuster, LICSW, Sr. Mental Health Clinician, for more information. Current fall schedule listed here; additional groups to start in the spring. HIV Support Groups currently offered: Corporacion Latina Enlazando por la Vida: a weekly support group conducted in Spanish; for men and women. If you are interested, or to make a referral, please call Marilyn Mojica at (617) Women to Women: a bi-weekly support group for women. If you are interested, or to make a referral, please call Volcie Richard at (617) or Mary Ann Sparks at (617) Newly Diagnosed Group: a bi-weekly support group for men and women diagnosed within the past year or those who have been away from treatment and want to reconnect. If you are interested, or to make a referral, please call Lynda Shuster at (617) Positive HOPE: (HIV Obstetrics Program and Education) a weekly support group for HIV+ pregnant women. If you are interested, or to make a referral, please call Lynda Shuster at (617) Living and Learning: a bi-weekly educational group, with outside speakers, offering information on a wide variety of topics (e.g. jobs/work, disability, the legal system, parenting, disclosure, relaxation, nutrition, education opportunities, etc.) If you are interested, or to make a referral, please call Lynda Shuster at (617) Cambridge Cares About AIDS 17 Sellers Street, Cambridge, MA Main Phone: (617) Fax: (617) TTY: (617) Wheelchair Accessible: Yes Website: Peer Support contact person: Gretchen Hill, Peer Support Program Manager, (617) , Program description: The CCA Peer Support Program provides a safe and comfortable place for people living with HIV/AIDS to receive social support on a drop in basis. In our Drop in Spot we provide easily accessible, client-centered services including support groups, luncheons, clothing drives, movie days, field trips, as well as individual support provided by Peer Leaders. Additionally, the Peer Support Program creates linkages to case management services and community resources for clients that may otherwise be lost to follow up. The Drop in Spot is open Monday, Wednesday, Thursday, and Friday from 9 5 and Tuesday Criteria: Participants must be HIV+ and complete a general intake. Expressions (arts and crafts group) Gay and Bisexual Men s Group Haitian Group Latino Group African Support Group Women s Support Group Men s Support Group Center for Community Health and Education (CCHER) 420 Washington Street, Dorchester, MA Main Phone: (617) Fax: (617) Wheelchair Accessible: Yes Website: Peer Support contact: Zita Massena, (617) x235, Program description: Monthly activity, support group for families, individual support and assistance, speaker s bureau and peer mentoring. Criteria: HIV+ clients only; family members welcome for social activities Anger Management Empowerment/Wellness Spirituality Group Support Group Activity Other Peer Support Activities: Peer Support Social Activities Social Service Social Support 4 Centro Latino de Chelsea 267 Broadway, Chelsea MA Main Phone: (617) Main Fax: (617) Website: Peer Support contact person: Sindia Jimenez, (617) x216, Program description: This program provides culturally competent individual peer to peer counseling support sessions for HIV positive individuals and affected family members. The program also provides group support for HIV/AIDS program participants and affected family members, service referrals, and advocacy. Our support groups are conducted mainly in Spanish and we provide on site congregate meals on a weekly basis. Criteria: Participants have to be HIV positive or HIV/AIDS affected clients from our caseload. Although, we welcome clients from any type of settings, this support group is not open to the public. In order to participate in groups, participants have to become a program member based on program criteria for participation. Vidas Unidas Concilio Hispano Inc. 105 Windsor Street, Cambridge, MA Main Phone: (617) Fax: (617) TTY: (617) Website: Peer Support contact person: Sara Ortiz-Escalante, (617) , Program Description: Training program for Latinas and Latinos to be leaders in their community in effort to educate in HIV, AIDS STDs, Hepatitis and Substance Abuse. Program provides ongoing support to peer leaders once a month and quarterly group support. Criteria: Candidates must demonstrate commitment to their community in reducing HIV and risk of transmission. Peer Leader Group DEAF Inc. 215 Brighton Avenue, Allston, MA TTY: (617) Fax: (617) Website: Peer Support contact: Hannah Lewis, Program Director, Program description: Biweekly group meetings, one on one support and information about workshops Criteria: Deaf, deaf blind, hard of hearing, and later deafened people only Peer Support Group 5 Dimock Community Health Center 55 Dimock Street, Roxbury, MA Main Phone: (617) x 1324 Fax: (617) Wheelchair Accessible: Yes Website: Peer Support contact person: Chevelle Sloan, (617) x1391, Program description: Provides a weekly support group as well as peer mentoring and individual support. Criteria: Open to all with HIV. HIV and Substance Abuse Women s Support Group HIV+ Women who are Head of Household Stand Up and Be Counted DotWell (Codman Square Health Center and Dorchester House Multi-Service Center) 637 Washington Street, Dorchester, MA Main Phone: (617) Fax: (617) Wheelchair Accessible: Yes Website: Peer Support contact person: Carole Brignol, (617) Program description: Bi-weekly support group for people living with HIV/AIDS Criteria: Referral from provider and HIV status documentation. Individuals must meet with Carole Brignol first, before attending groups. HIV Support Groups Offered: Support for people living with HIV/AIDS Fenway Community Health 7 Haviland Street, Boston, MA Main Phone: (617) Fax: (617) TTY: (617) Toll free: (888) Wheelchair Accessible: Yes Website: Peer Support contact person: Gail Beverly, (617) Program description: Short term support groups for HIV+ people and partners of HIV+ people; individual short term support Criteria: Open to all with HIV or HIV-related issues HIV+ Support Group Mind/Body Group Newly HIV+ Group Haitian Multi-Service Center 185 Columbia Road, Dorchester MA Main phone: (617) Fax: (617) Peer Support contact person: Jean-Claude Bastien, (617) , Program description: The program provides monthly support groups for clients and family members. Individual support and assistance are also provided to the clients. Criteria: Haitians living with HIV and their family members Peer Support Group Healing Our Community Collaborative AIDS Action Committee 294 Washington St., 5th Floor, Boston MA Phone: (617) Fax: (617) TTY: (617) Wheelchair Accessible: Yes Website: Peer Support contact person: Heidi Bright (617) , Program description: HOCC is a nurse led/peer driven prevention and education program for women - by women infected, affected, or at risk for HIV. HOCC is a collaborative effort between several organizations in the Boston area including JRI Health and Dimock Community Health Center. The board members are women infected, affected, or at risk for HIV/AIDS. All program planning and design is generated from the HOCC Board which also meets monthly at AAC. Future planning for HOCC includes providing HOCC programming offsite in other community venues and a HOCC Retreat for Women. Criteria: Women infected, affected, or at risk for HIV/AIDS. Healing Our Community Collaborative Group (see listing under AIDS Action Committee) Health Awareness Services 354 Waverley Street 1 st Floor, Rear, Framingham, MA Main Phone: (508) Fax: (508) Website: Peer Support Contact Person: Chelsea Brehm, Support Group Coordinator (ext. 14) Program Description: The Support Group Program is a small group, skills building program designed to help clients with the day-to-day issues of living with HIV. Participants learn skills and coping techniques from each other, with guidance provided by a facilitator with extensive experience working with persons with HIV/AIDS. Sessions for couples and families can be arranged through the Support Group Coordinator. Criteria: Participants must be HIV+. Latino Group Men s Group Women s Group Monday Nights Out 7 Hispanic Office of Planning & Evaluation (HOPE) 165 Brookside Ave, Jamaica Plain, MA Main Phone: (617) Main Fax: (617) TTY: (617) Website: Peer Support contact person: Israel Flores, (617) x128, Centro de Apoyo Pedro Zamora Jane E. Scherban, LCSW, LMHC 466 Commonwealth Ave., Suite 201B, Boston, MA Main Phone: (617) Contact person: Jane Scherban, (617) Wheelchair Accessible: Yes HIV+ Support Group for Gay and Bisexual Men HIV+ Support Group for Gay and Bisexual Men (Long Term Survivors) JRI Health 25 West Street, 4 th Floor, Boston, MA Main Phone: (617) Fax: (617) Wheelchair Accessible: Yes Website: Peer Support contact person: Paul Keating, (617) , x345, Program description: This program has 4 support groups. Aside from support groups, we also host a myriad of educational and social support programming for providers and consumers, including monthly POZ socials, a Providers Networking Breakfast, POZ Prevention programs, and the HIVstopswithme website. Longterm Survivors POZ 20s POZ Men s HIV Support Group for Men Other Peer Support Activities: HIVstopswithme website (www.hivstopswithme.org) Providers Networking Breakfast POZ Socials Latin American Health Institute 95 Berkeley Street, 6 th floor, Boston, MA Main Phone: (617) Fax: (617) TTY: (617) Website: Peer Support program contacts: 8 Alberto Rodriguez, (617) x118, Marta Casas, (617) x170, Melisa Flores, (617) x187, Program description: The Latin American Health Institute Futuro Mental Health Program provides weekly support groups for individuals living with HIV/AIDS. HIV/Mental Health/Substance Abuse Support Group (Dual/Triple Diagnosis Group) LHI/BLC Therapeutic Latino Support Group Stabilization/Coping Skills Group Women s Substance Abuse Support Group Massachusetts General Hospital 55 Fruit Street, Boston, MA, Phone: (617) Website: Peer support contact person: Sandy McLaughlin, (617) Program description: Support and educational programs 50ish gay men with HIV Parents of Adults living with HIV Women with HIV MGH Chelsea Health Care Center 151 Everett Ave, Chelsea, MA Main Phone: (617) Fax: (617) Wheelchair Accessible: Yes Peer Support contact person: Vikki Segovia, (617) , and Judith Molinari-Wynn, (617) Program Description: Provides weekly support for HIV+ patients and their families. The English and Spanish groups meet on alternate weeks. Vikki also offers individual support. Judith Molinari-Wynn is Nurse medical manager for new MDPH-EMMS-HIV/AIDS program. Criteria: Patients, friends and family welcome. HIV/AIDS Support Group Other Peer Support Activities: EMMS HIV/AIDS Program (Enhanced Medical Management Services) Multicultural AIDS Coalition (MAC) 31 Heath Street, Jamaica Plain, MA Main Phone: (617) Fax: (617) Wheelchair Accessible: Yes Website: Peer Support contact person: Cynthia Harris, (617) , Program description: Peer support groups are population-specific, for example: MOCAA at MAC for MSM (men who have sex with men); patient education for City of Boston residents, and Casa Iris for Spanish-speaking people. 9 Criteria: open to all HIV+ African American and Latino people Casa Iris Support Group Health Education Groups You R Not Alone New Beginnings/SMOC 89 Bethany Road, Framingham, MA Main Phone: (508) Fax: (508) Peer Support contact person: Betsy Conway/Dee Clark, (508) , Program description: This program provides weekly support at a community meeting. One meeting a month is dedicated specifically to HIV support and is lead by an outside facilitator. Criteria: All current participants of New Beginnings. Other information: Other HIV support groups also offered in community (Metrowest) New Beginnings SPAN, Inc. 105 Chauncy Street, 6 th floor, Boston, MA Main Phone: (617) Fax: (617) TTY: (617) Wheelchair Accessible: Yes Peer Support contact person: Lisa Cygan, (617) x126, Program description: Two weekly support groups for HIV+ offenders/ex-offenders; meals, informal peer support, variety of activities which change week to week. Participants must be members of SPAN program (see below). Criteria: Offenders and ex-offenders who have gone through the enrollment process (intake and orientation). Latino Peer Support Group Thursday Night Reintegration Group Other Peer Support Activities: Congregate Meals Program: Monday Brunch Congregate Meals Program: Friday Ice Cream Social Other HIV Peer Support Activities Upham s Corner Health Center 500 Columbia Road, , Dorchester, MA Main Phone: (617) Fax: (617) Website: Peer Support contact person: Charles Poncho Brown, (617) x19, Program description: Individual support and assistance, speaking opportunities. 10 Thursday night drop-in support group Thursday night drop-in support group Other Peer Support Activities: Summer Open House Whittier Street Health Center 1125 Tremont St., Roxbury, MA Main Phone: (617) Fax: (617) Website: Peer Support contact person: Lucianaga Edwards, (617) , Program description: Individual support and assistance, peer support group. Peer Support group 11 HIV Support Groups Peer-led: Facilitated by HIV+ Peers BOSTON LIVING CENTER Chat Before Brunch When: Saturdays, 11am-12 pm Contact person: Joe Lemieux, (617) x 253 Discussion topics: Varies, includes relapse prevention, harm reduction, maintaining recovery, working on goals, gratitude Criteria: All HIV+ members are welcome. Average meeting attendance: 5-10 Deaf Support Group When: Alternate Mondays, 1:00pm 2:00pm Contact person: John Hardel at or Melanie Cohn-Hopwood at Discussion topics: Varies; includes support, information, and activities Criteria: All deaf or hard of hearing members of the Boston Living Center and Deaf, Inc. Average meeting attendance: 5 Gay and Bisexual Men s Group When: Luncheon on the fourth Tuesday of the month from 12:30pm 1:30pm; Movie Night on the third Thursday of the month from 6:00pm 8:00pm Contact person: Joe Lemieux, (617) x 253 Discussion topics: Varies, topics including dating, social events, relationships, living with HIV, and being gay/bi. Criteria: All HIV+ gay and bisexual men Average meeting attendance: 12 Healthy Relationships When: Varies (runs in 5-week cycles), check with contact person Contact person: Kim Tracy, (617) x 224 or Brenda Bellizeare (617) x241. Discussion topics: Structured, evidencebased program proven to have positive results! This is a time-limited (5-week) series of groups. Each series focuses on a different population. Criteria: All HIV+ members of the target population are welcome. Average meeting attendance: 5-12 New Members Meeting When: Second Thursday of the month, 12:30pm 1:30pm Contact person: Joe Lemieux, (617) x 253 Discussion topics: People new to the Boston Living Center, new to Boston, newly diagnosed, disclosure, and more Criteria: All HIV+ members Average meeting attendance: 6 Spirituality Group When: Saturdays, 1:00pm 2:30pm Contact person: Melanie Cohn-Hopwood, (617) x 250 Disc
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